Leggo My Genome: What Ethical Requirements Should Govern the Communication of Direct-to-Consumer Genetic Test Results?
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The Science Communication Project @ISU was founded in 2010 with the goal of enhancing collaborative research on, education for, and the practice of public science communication, broadly conceived. Our biennial symposia- which include public presentations of multidisciplinary research and interactive workshops- bring together a network of scholars who share interests in public engagement of science, environmental communication, natural resource management, and agriscience. Conference proceedings showcase research, evaluations, and critiques of science communication-related practices and phenomena.
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Scholars in scientific communication have shared a growing concern about the ethical implications of approaches to direct-consumer genetic testing. To add to this evolving conversation, this paper addresses the debate about the ethics of communicating genetic testing results through a rhetorical inquiry of the 23andMe controversy.